Scroll down for
1: The NHS Data Grab
2: Action: Opt Out and Protest
3: Big breakthrough – An update from Foxglove (23rd July 2021) and 999 Call for the NHS (31st July 2021)
NHS Data Grab
from OpenDemocracy – more information is here
The Government is trying to slip through a massive change to how NHS patient data is handled. It wants to take the patient records which GPs hold on everyone in England, and enter them all into one massive database. And it wants to make this data available to “third parties” – including private companies.
This plan would mean incredibly sensitive data about all of us who use the NHS – including sexual health, mental health, criminal records – being pooled and shared.
The plan was announced quietly, via a single website. Health data could be used for the good of the NHS. But any changes to how our health data is handled must be done in a transparent, trustworthy, legal way. The scheme is being rushed through by stealth. Patients have been denied a meaningful say in what happens with their data. No safeguards have been included to prevent private companies using our data for their own profit.
Dodge the NHS Digital Data Grab
from Open Rights Group – more information is here
NHS Digital is planning to transfer the sensitive medical histories of over 50 million patients registered at GPs in England to a database accessible by commercial third parties. Protect your medical data by opting out today.
The data will include diagnoses, symptoms, observations, test results, medications, allergies, immunisations, referrals, appointments, information about physical, mental and sexual health, data on sex, ethnicity, sexual orientation and more.
Though names won’t be collected, this data will only be pseudonymised. This means it will still be possible to identify patients by cross-referencing data like postcode, age and diagnosis.
The official line is that sharing this data will aid in the research and development of cures for serious illnesses, but the Government has a lot to gain by selling access to companies too. The secretive way that NHS Digital is going about this will only undermine public trust amidst an ongoing health crisis
NHS data – an incredibly valuable public asset
From Foxglove – more information is here
The NHS holds a huge amount of health data. In fact, it’s the largest set of structured, machine-readable health data in the world. The data is so good thanks to the fundamental values of the NHS as a health service that cares for everyone – that means the data covers all of us, across the UK, regardless of wealth or background.
Responsible use of this data can be of huge benefit, helping improve care and develop new treatments. Patient data has helped the response to Covid, and, with proper safeguards to protect the public interest, more could be done in the future. One estimate of the value of patient data to the NHS puts it at a staggering £10 billion per year.
An asset to be stripped?
Private corporations have also spotted the value of NHS data – and are keen to cash in. They are seeking contracts from the government to provide outsourced data services to the NHS. These contracts can be lucrative in themselves – Palantir’s latest contract is for £23million – but the even bigger prize is access to the data itself. Many companies see public data as a resource they can exploit to develop highly profitable new products and services.
An excellent video from Double Down News
****OPT OUT !!!!
Information from MedConfidential about the opt-out process is here
You will need to fill out the opt-out form here and take this to your GP
Information from NHS Digital is here
Additional info from the campaign group 999CallforNHS is here
They make the point that “THIS IS NOT THE NHS GRABBING YOUR DATA – this is the Government / Dept. of Health / NHSEngland grabbing your data and making it available – to whom?”
AND PROTEST !!!! ****
Sign the Foxglove petition here “NO PALANTIR IN OUR NHS”